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Table 3 Qualitative data: top five most frequent responses by decision aid

From: Anticipated regret in shared decision-making: a randomized experimental study

Control group standard decision aid

Experimental group regret-incorporated decision aid

Frequency

Response

Frequency

Response

18 (19 %)

With mastectomy, after 10 years, about 8 out of 100 women will have local recurrence. With lumpectomy and radiation, after 10 years, about 10 out of 100 women will have local recurrence

19 (22 %)

With mastectomy, after 10 years, about 8 out of 100 women who have will have local recurrence. With lumpectomy and radiation, after 10 years, about 10 out of 100 women would have a local recurrence

16 (17 %)

Mastectomy removes the entire breast

18 (20 %)

If a woman undergoes mastectomy and is unable to cope with the loss of her breast…she may regret her decision to treat a cancer that could also have been cured with breast-conserving therapy. This regret may be especially pertinent if she learns that a similar woman with a similar cancer chose lumpectomy with radiation and continued to live cancer-free without the same sacrifice to her appearance

10 (10 %)

The chance of local recurrence is low after mastectomy and slightly higher after lumpectomy with radiation

17 (19 %)

Lumpectomy saves the breast

9 (9 %)

You will live the same length of time whether you choose mastectomy or lumpectomy with radiation

14 (16 %)

24.1 % of women choosing mastectomy have regretted their decision afterwards

9 (9 %)

Cancer that comes back in the breast after lumpectomy can usually be successfully treated with mastectomy

14 (16 %)

You will live the same length of time whether you choose mastectomy or lumpectomy